HB 424: AN ACT TO AMEND TITLE 16 RELATING TO AUTISM SURVEILLANCE AND REGISTRATION.

In 2004, the 142nd General Assembly passed House Bill No. 500 as amended by House Amendment No. 1, creating an Autism registration and surveillance program. Physicians, surgeons, dentists, podiatrists, or other healthcare practitioners are required to report occurrences using the established procedure or incur a fee of $100 for each violation of failure to report. The Department of Health & Social Services (DHSS) has received questions from providers about Delaware’s required Autism Surveillance and Registration Program and concerns about privacy, ethics, and the absence of parental consent to store this information. The Autism Surveillance and Registration Program was implemented in a passive approach, and the data collected is not used for analysis or review. The Division of Public Health’s current strategy around Autism is to promote awareness and encourage appropriate screenings. This Act repeals the Autism Surveillance and Registration Program and requires that protected health information collected at an individual level to be expunged under statutory confidentiality requirements.